The European Union defines a disease or condition as rare if it affects fewer than 1 in 2,000 people within the general population. Currently, 6000 to 8000 rare diseases have been identified, and new conditions are regularly being described in the literature.
Around one in 17 people will develop a rare disease at some point in their lives, so while they are individually rare, cumulatively these diseases affect a substantial proportion of the population. The impacts on these individuals and their families are wide-ranging.
About 30 million people living in the European Union (EU) suffer from a rare disease. More than 90% of rare diseases still lack an effective treatment. Often rare diseases are chronic and life-threatening. Rare diseases can be a single gene, multifactorial, chromosomal or non-genetic. It takes years to receive an accurate diagnosis of a rare disease.
Rare diseases include rare cancers such as childhood cancers and some other well-known conditions, such as cystic fibrosis and Huntington’s disease.
Listen on Spotify:
Identification and education | Click to watch
Improving diagnosis, education and awareness of rare diseases
Effective therapy | Powered by iFpa |Click to watch
Coaction between data science and research for better treatment
(Better) Life with disease | Click to watch
Better healthcare for everyone involved in rare diseases through technological and other solutions
Pre-event
Save the date! We will organize a series of pre-events to give more information about the Hackaton and help you familiarize yourself with its challenges. Come up with an innovative solution or apply it to your existing project. Register yourself or your team and continue developing your project before the main event.
Hackaton
Join an Onsite intensive demo development period! Knowledgeable and skilled mentors will help you finish your product. The event is a fantastic opportunity to network and learn new skills. And finally, you will pitch your innovative idea to the jury to win!!!
Post-Event
Even if you are not chosen as a winner, we encourage you to continue your projects. Chin up and hack your future! We will present you with new opportunities at our coming community events. Also, partners or other entities may be interested in future possibilities to collaborate with you, so please be active!
| 03:00 PM | Registration is open! | Walk-in, welcome packs and snacks Venue hall |
| 04:00 PM | Welcome! | Quick hello, intro, wifi details, “toilets and fire exits”, health & safety, schedules, THANK YOU SPONSORS! Auditorium 203 |
| 04:15 PM | “The Reason Why We are All Here” | Overview of the challenge(s) by Lina Jankauskaitė Auditorium 203 |
| 04:30 PM | Pitch and match! | Pitch our idea, set your goal,high five your teammate Auditorium 203 |
| 05:00 PM | Teambuilding | Getting to know team members |
| 06:00 PM | LET THE HACKING BEGIN! | Everyone gets started |
| 09:00 PM | Team progress report | Quick “around the room” standup; each team shares a quick summary of what they are doing + Q&A and needs for organizers Auditorium 203 |
| 09:30 PM | End of the day 1 | The Venue closes for the night. |
| 08:00 AM | Doors open and coffee is served | Snack and chat! |
| 09:00 AM | Registration and quick Hello! | Registration and intro to day 2: hackathon briefing Auditorium 203 |
10:00 AM | Morning activites! Choose which workshop(s) you are interested and don’t forget to register: (registration required only for those who are not participating in the Hospiton) | TECH TALK 10:20-10:50 Building a drug discovery program 101 | Vaistų atradimo programos 101 kūrimas by Delta Biosciences Dominykas Milašius Auditorium 203 |
SPEAKER CORNER 10:00-10:20 „Funding Opportunities in Lithuania for Startups“ Edvinas Nagulevičius, Innovation Manager/ Business consultant at Innovation Agency Lithuania Auditorium 203 | ||
WORKSHOP presented by Povilas Sidaravičius Auditorium 203 | ||
| 01:00 PM | Lunch | Venue Hall |
| 01:45 PM | Audience Feedback sessions | Service to test your participants’ prototypes with patients organizations Powered by: Auginu ypatingą vaiką | Sraunija | |
| 03:00 PM | Mentoring session | Experts help around Venue Hall |
| 06:00 PM | Dinner and networking | Quick bite and useful connection! Venue Hall |
| 06:30 PM | Couching session: key points in team success Powered by Innovation Agency | Co-Founder of |
| 08:30 PM | Creative work! | |
| 09:30 PM | End of the day 2 | The Venue closes for the night. |
| 09:00 AM | Welcome and Hello! | Intro day 3 |
10:00 AM | How to make your Pitch | By Balticsandbox |
| CEO and founding partner Sandra Golbreich | ||
| Cofounder Andrius Milinavičius | ||
| 10:45 AM | Creative work | Finishing touches! |
| 01:00 PM | Lunch | Venue Hall |
| 01:45 PM | Hacking Ends | |
| 02:00 PM | PITCH SESSIONS | All teams will have 2-3 mins (plus 2 min Q&A) to present their hacks to the judging panel and other teams. Auditorium 203 |
| 04:00 PM | Judging ends | The judges retire to decide the winners |
| 04:15 PM | Winner announcements | Prizegiving & quick “Thank You” speech. Auditorium 203 |
| 04:30 PM | Networking | Sweet celebration! |
HACKER
No matter what your background is – whether you are a student, engineer, healthcare provider, designer, pharmacist, entrepreneur, patient, etc. – we welcome you to join us!
MENTOR
We are looking for superheroes – managers, experts, and speakers who could provide real-time feedback to our teams and help them grow ideas into solutions!
PARTNER
Maybe your organization is looking for solutions to your digital health challenges or you want to promote your brand to innovators, we have a service for you. Hospiton can be your partner in open innovations.
STARTUP
Are you a startup looking for market access, pilot partner or seed funding? Join Hospiton to pitch your solution, get feedback and benefit from our mentoring. Also, you can meet potential partners or co-founders. Let it be the most productive weekend of the year!
Life science
Dr. Liudvika Starkiene
IFPA, Amgen
Board member,
Sr. Manager Value, Access & Policy Baltics
Lukas Arlauskas
Pixinn | KTU
Full stack developer, Academic assistant
Laimonas Kairiūkštis
Kaunas University of Applied Sciences
Lecturer interested in close measurements and diagnostics. Expert in non-destructive diagnostics using ultrasonic gratings, technical sciences, medical or chemical industry equipment.
Tomas Proscevičius
KTU Startup Space
I am the business development manager at KTU Startup Space with more than 8 years of experience in innovative technological startups development and R&D commercialization. During my free time I like fishing and treasure hunting coins
Jolita Bartkutė-Stabrauskienė
Lithuanian University of Health Sciences
PhD student
Project and product development specialist at "Number 8 Labs",
a pharmacist at "Gintarine vaistine"
Main goal is to motivate, support, and direct team to the successful future
Start-ups
Regulation
Patient advocacy
Povilas Sidaravičius
I can help identify opportunities and problems earlier
Simona Stankevičiūtė LSMUL KK | Parexel
Clinical Pharmacologist Regulatory Consultant
Deimante Hoppenot LSMUL KK, Assoc.prof.
Adult pulmonologist working with pulmonary hypertension, severe asthma and interstitial diseases.
Ruta Navardauskaite LSMUL KK, Coordinator of Rare and Undiagnosed Diseases Coordination center
Pediatric Endocrinologist,
Interested in Rare Disease treatment, Coordination, Database creation
Andrius Milinavičius Baltic Sandbox Ventures
Launched sustainable value accelerator Baltic Sandbox that heavily invests into promising ideas, facilitates mentorship, knowledge sharing, helps with fundraising and helps startups to scale in Europe. Involved in EdTech, BioTech, SeniorTech, FinTech, MedTech and other innovative fields.
Power systems, Physiological optics,
Light engineering,
Team work
Miglė Kriuglaitė Kaunas University of Technology
Lecturer, PhD in Electric engineering. Expert in power systems, physiological optics, light engineering, team work.
inovation, HR
Urtė Griškevičienė Tamro Baltics, BENU Lithuania, LSMU
HR Business partner in retail. Forever student-master of pharmacy and health care management. Also PhD student of analytical and toxicology chemistry
Innovation,
Life science
Vinordas Petkus Metida
Patent Agent
Protection of inventions related to the fields of biotechnology and pharmacy
Life science
Rūta Pumputienė "Ellex Valiunas" Law Firm
Partner, leading the Life Sciences & Healthcare Regulatory team
Strategy,
VC
Dominykas Milašius Delta biosciences
Co-founder | Delta biosciences,
Founder | Unit 370
DR. Lina Jankauskaite Chief of rare and undiagnosed diseases coordination center
Pediatrics, non-invasive diagnostics, prediction modeling, choosing wisely, evidence-based, pain medicine
Erika Paule
Founder, CEO, PO at popup.lt
Strategy, Scalability, Market fit, Business plan, Marketing are the topics that I am natural at.
Raišutis Renaldas
Kaunas University of Technology
Innovator and co-author of 10 international patents.
CTO & Co-founder of startup Diabetis JSC, member of Lithuanian Business Angel Network (LitBAN)
3D printing in pharmaceuticals
Lauryna Pudžiuvelytė
Lithuanian University of Health Sciences
Project and product development specialist at Innovative Pharma Baltics,
researcher at Institute of Pharmaceutical Technologies
Edvinas Nagulevičius Innovation Agency
Innovation Expert
Bussiness developement expert
DR. Indrė Brazauskaitė Tamro Baltics, PHOENIX Group company
Speciality Manager Baltics for orginal and innovative therapies
Data science, Technology, Regulatory
Jolanta Zaikauskienė
IFPA |Medical Director Dermatology, Global Medical Affairs, AbbVie
Expert in medical & clinical research, Business management, People leadership, and establishing partnerships with multi-stakeholders
Tanja Fens
University of Groningen
Researcher, project manager and pharmacist Her research areas include safety-related costs and effects in economic evaluations for vaccines and treatments (respiratory/ COPD treatments), Health Policy (HTA and Regulatory Affairs), and education.
Andrius Rapalis
Kaunas University of Technology
My research field is biomedical engineering. Expert in medical data processing and algorithm development.
Ilona Lukoševičiutė-Noreikienė
Lithuanian University of Health Sciences
Lecturer and Mentor in Innovative Education. Area of interest: digital transformation in medical education, innovative medical evidence based education
Viktorija Butrimaitė - viktorija.butrimaite@lsmu.lt
#Communication #healthcare #research #pharma#education #innovation
Irina Kolomiiets -irina.kolomiiets@lsmu.lt
#BusinessDevelopment #entrepreneurship #EITHealth #innovationecosystem #digitalhealth
Indrė Karaliutė -indre.karaliute@lsmu.lt
#phdcouncil #gastro #preclinicalresearch #datascience #noveltheraphies #contentcreation
Neringa Valantinė - neringa.valantine@ktu.lt
#BusinessDevelopment #Scouting #recruitment #projectimplementation #startup
