The European Union defines a disease or condition as rare if it affects fewer than 1 in 2,000 people within the general population. Currently, 6000 to 8000 rare diseases have been identified, and new conditions are regularly being described in the literature.
Around one in 17 people will develop a rare disease at some point in their lives, so while they are individually rare, cumulatively these diseases affect a substantial proportion of the population. The impacts on these individuals and their families are wide-ranging.
About 30 million people living in the European Union (EU) suffer from a rare disease. More than 90% of rare diseases still lack an effective treatment. Often rare diseases are chronic and life-threatening. Rare diseases can be a single gene, multifactorial, chromosomal or non-genetic. It takes years to receive an accurate diagnosis of a rare disease.
Rare diseases include rare cancers such as childhood cancers and some other well-known conditions, such as cystic fibrosis and Huntington’s disease.
Save the date! We will organize a series of pre-events to give more information about the Hackaton and help you familiarize yourself with its challenges. Come up with an innovative solution or apply it to your existing project. Register yourself or your team and continue developing your project before the main event.
Join an Onsite intensive demo development period! Knowledgeable and skilled mentors will help you finish your product. The event is a fantastic opportunity to network and learn new skills. And finally, you will pitch your innovative idea to the jury to win!!!
Even if you are not chosen as a winner, we encourage you to continue your projects. Chin up and hack your future! We will present you with new opportunities at our coming community events. Also, partners or other entities may be interested in future possibilities to collaborate with you, so please be active!
|03:00 PM||Registration is open!||Walk-in, welcome packs and snacks Venue hall|
|04:00 PM||Welcome!||Quick hello, intro, wifi details, “toilets and fire exits”, health & safety, schedules, THANK YOU SPONSORS! Auditorium 203|
|04:15 PM||“The Reason Why We are All Here”||Overview of the challenge(s) by Lina Jankauskaitė Auditorium 203|
|04:30 PM||Pitch and match!||Pitch our idea, set your goal,high five your teammate Auditorium 203|
|05:00 PM||Teambuilding||Getting to know team members|
|06:00 PM||LET THE HACKING BEGIN!||Everyone gets started|
|09:00 PM||Team progress report||Quick “around the room” standup; each team shares a quick summary of what they are doing + Q&A and needs for organizers Auditorium 203|
|09:30 PM||End of the day 1||The Venue closes for the night.|
No matter what your background is – whether you are a student, engineer, healthcare provider, designer, pharmacist, entrepreneur, patient, etc. – we welcome you to join us!
We are looking for superheroes – managers, experts, and speakers who could provide real-time feedback to our teams and help them grow ideas into solutions!
Maybe your organization is looking for solutions to your digital health challenges or you want to promote your brand to innovators, we have a service for you. Hospiton can be your partner in open innovations.
Are you a startup looking for market access, pilot partner or seed funding? Join Hospiton to pitch your solution, get feedback and benefit from our mentoring. Also, you can meet potential partners or co-founders. Let it be the most productive weekend of the year!
Sr. Manager Value, Access & Policy Baltics
Full stack developer, Academic assistant
Lecturer interested in close measurements and diagnostics. Expert in non-destructive diagnostics using ultrasonic gratings, technical sciences, medical or chemical industry equipment.
I am the business development manager at KTU Startup Space with more than 8 years of experience in innovative technological startups development and R&D commercialization. During my free time I like fishing and treasure hunting coins
Project and product development specialist at "Number 8 Labs",
a pharmacist at "Gintarine vaistine"
Main goal is to motivate, support, and direct team to the successful future
I can help identify opportunities and problems earlier
Clinical Pharmacologist Regulatory Consultant
Adult pulmonologist working with pulmonary hypertension, severe asthma and interstitial diseases.
Interested in Rare Disease treatment, Coordination, Database creation
Launched sustainable value accelerator Baltic Sandbox that heavily invests into promising ideas, facilitates mentorship, knowledge sharing, helps with fundraising and helps startups to scale in Europe. Involved in EdTech, BioTech, SeniorTech, FinTech, MedTech and other innovative fields.
Lecturer, PhD in Electric engineering. Expert in power systems, physiological optics, light engineering, team work.
HR Business partner in retail. Forever student-master of pharmacy and health care management. Also PhD student of analytical and toxicology chemistry
Protection of inventions related to the fields of biotechnology and pharmacy
Partner, leading the Life Sciences & Healthcare Regulatory team
Co-founder | Delta biosciences,
Founder | Unit 370
Pediatrics, non-invasive diagnostics, prediction modeling, choosing wisely, evidence-based, pain medicine
Strategy, Scalability, Market fit, Business plan, Marketing are the topics that I am natural at.
Innovator and co-author of 10 international patents.
CTO & Co-founder of startup Diabetis JSC, member of Lithuanian Business Angel Network (LitBAN)
Project and product development specialist at Innovative Pharma Baltics,
researcher at Institute of Pharmaceutical Technologies
Bussiness developement expert
Speciality Manager Baltics for orginal and innovative therapies
Expert in medical & clinical research, Business management, People leadership, and establishing partnerships with multi-stakeholders
Researcher, project manager and pharmacist Her research areas include safety-related costs and effects in economic evaluations for vaccines and treatments (respiratory/ COPD treatments), Health Policy (HTA and Regulatory Affairs), and education.
My research field is biomedical engineering. Expert in medical data processing and algorithm development.
Lecturer and Mentor in Innovative Education. Area of interest: digital transformation in medical education, innovative medical evidence based education
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